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Fostering Higher Well being: Abbey’s Reflections on the Energy of the Affected person Voice in Analysis


Greater than ever earlier than, sufferers and their households play a vital position in analysis. The Bronchial asthma and Allergy Basis of America (AAFA) and its Youngsters with Meals Allergy symptoms (KFA) division have interaction folks within the analysis course of to allow them to have a stronger voice in selections that influence their lives. Elevating neighborhood voices is necessary in order that remedies and insurance policies handle the wants of the folks they intend to serve. Together with your help KFA:

  • Advocates for public insurance policies that guarantee folks with allergy symptoms and bronchial asthma have high-quality well being care, entry to remedy choices, and stay in wholesome environments.
  • Conducts and helps analysis that places sufferers’ wants first.
  • Connects folks to monetary, social, and emotional help.
  • And helps save lives by way of well being teaching programs.

Right now, we’re honored to share the inspiring story of a person whose life has been modified due to their involvement in KFA’s patient-centered analysis initiatives.


Abbey manages a number of meals allergy symptoms and bronchial asthma for herself and her household. She additionally has eosinophilic esophagitis (EoE). Managing these situations has not all the time been straightforward for her, however being concerned in analysis tasks with AAFA and KFA has helped her really feel empowered to handle them. She feels proud to be a part of the trouble to enhance the lives of sufferers with allergic situations and bronchial asthma.

“AAFA/KFA help a wide range of analysis tasks that assist us handle these situations and enhance the lives of allergy and bronchial asthma sufferers all over the place.”

AAFA’s and KFA’s patient-centered analysis tasks gave Abbey and her household the chance to share their lived expertise with dwelling with meals allergy symptoms, bronchial asthma, and different associated situations –together with their issues and fears. They have been shocked and comforted that the ultimate stories have been crammed with tales from folks with related experiences and emotions as them. Not solely does this assist construct a way of neighborhood amongst individuals who handle meals allergy symptoms and bronchial asthma, however they assist educate well being care suppliers about what it’s prefer to stay with these situations as effectively.

Abbey is aware of that this analysis is necessary for persevering with training for well being care suppliers and to assist evolve affected person care.

“Given the outcomes of AAFA and KFA’s analysis, I do know that we aren’t the one sufferers to have these experiences. AAFA’s CME program and patient-impact research have an actual potential to enhance affected person care and well being outcomes, if physicians, college, and different members of the well being care neighborhood will make the most of these alternatives.

My sons really feel an important deal extra confidence of their future medical care due to these applications and research, and are hopeful, too, that the longer term will carry progressive remedies that not solely enhance their well being however their lives.”

Collectively, let’s construct a world the place analysis results in understanding, training and help foster confidence, and advocacy brings concerning the change all of us aspire to see.

In the event you desire to mail a examine, postmark your reward by Dec. 31 and ship to:

Bronchial asthma and Allergy Basis of America
PO Field 424053
Washington, DC 20042-4053

Thanks on your ongoing help.

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